I Only Cry At Night, living with Sickle Cell Disease

I loved the book and I wish there were more books like this, to help me not feeling alone in this world with my disease. One person found this helpful. Such an awesome story!

I highly recommend this story to those fighting any type of life situation. So many moments of inspiration in a time of desperation. I also appreciated all the medical information, for I have a daughter whom suffers with SC type sc. Compelling story of one person's battles with Sickle Cell. A must read - especially for advocates and administrators in this space.

I really enjoyed Pams prospective of growing up with the low expectations and yet overcoming them both scholastically and physically. A real hero and gives glory to God. See all 14 reviews.

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See more of P. I just saw your recent post and am interested in reading your book. I am definitely going to buy a copy.

Indicators of an Emergency Situation

I just wanted to wish you good health and may god bless you and your family. I love this lady! Sickle Cell Society on Twitter. He was a handsome, clever, confident and caring young man. Supporting my sister in the struggle. Lakiea Bailey is asking for donations. And you will walk with the author, hoping for her through each chapter as you learn what life is like for those born with the disease. You will feel frustration because of misinformation and then satisfaction as this brave woman continues to strive to spread awareness of Sickle Cell Disease, how to treat it, and how to live with it.

Did you know that Sickle Cell Disease: Allen Jones, a Sickle Cell Disease advocate, has written a book that is well worth reading. In this book she not only shares how this disease has affected her own personal life and how she had to learn to cope with it in all areas of life, but having done a great deal of research she has included valuable information with disturbing statistics.

Jan 13, Hussain rated it it was ok. When I purchased this book I had the impression that the writer will talk about experience with sickle cell solely. It turns out to be an autobiography book for the writer. It describes her sufferings and struggles living in a torn apart family in a bad neighborhood and her struggles to survive in life. Part of her struggle was having Sickle Disease.

The writer blames her family, mother and father specifically for her sufferings, complain about her mother acting like a victim all the time and fo When I purchased this book I had the impression that the writer will talk about experience with sickle cell solely. The writer blames her family, mother and father specifically for her sufferings, complain about her mother acting like a victim all the time and forgets that she is victimizing herself in her entire book.

I share big parts of her concerns having sickle cell my self but at the same time I dislike the way she conducted her resentment for something she had nothing to do with having in the first place. It is totally legit for a person to agonize and suffer from such a nasty disease but more supportive and encouraging talks are needed for those patients. Not only sharing agony and resentment. May 12, Shaima rated it it was amazing. I wish this book would become popular among as many people as possible. It portrays a really serious problem that is spreading widely especially in my country.

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SCD is not a joke! Sometimes I get shocked when people don't know what exactly is SCD, and sometimes they have many misunderstandings and false concepts, this ignorance should be wiped away as soon as possible because it just makes things worse for all the people who are fighting it on a daily basis. Please read this book, you would def I wish this book would become popular among as many people as possible.

Please read this book, you would definitely learn a thing or two about SCD. Melanie Grant rated it it was amazing Sep 21, Ana Indhira Jimenez rated it really liked it Feb 05, Elle Rose rated it liked it Jan 02, Lauren Beck rated it really liked it Jun 28,