Good luck Juliette, your situation struck a chord and I so wish that life could become easier, you will remain in my thoughts. Dec 13, Barbara rated it really liked it Shelves: You could be forgiven for thinking it a bit odd that my choice of 'holiday reading' for a short trip to Morocco was a book about a young woman suffering a bunch of highly painful and debilitating illnesses, choosing lots of totally unsuitable men and spending a lot of time doubled up in agony.
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My husband kept asking me WHY I was reading something so miserable and somehow the response "But she's really funny" didn't seem to quite explain why Juliette Wills' book was so compelling. I have had a rem You could be forgiven for thinking it a bit odd that my choice of 'holiday reading' for a short trip to Morocco was a book about a young woman suffering a bunch of highly painful and debilitating illnesses, choosing lots of totally unsuitable men and spending a lot of time doubled up in agony. I have had a remarkably pain-free life and can't even begin to imagine what Wills has lived through with ulcerative colitis, ankylosing spondylitis, scoliosis and eventually even more crappy things.
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Seeing it written down really helped me to understand how exhausting, depressing and even suicidal she felt. What's remarkable is that through all of this, her sense of humour never seems to fail her. Her parents are absolute stars and most of her friends seem to have been rocks of solid support. Her taste in men seems to reflect a shocking lack of self-worth as she picks losers, liars and utter space-cadets.
Her early life as a journalist was really interesting and at times very funny and serves to contrast against just how awful it worked out later. Whilst there are times when reading about not sleeping for weeks on end, all kinds of bodily 'gunk' falling out of her butt and constant pain does get a bit challenging and - dare I say - repetitive. Her apparent bad treatment at the hands of uncaring nurses is shocking but very believable. My step-father had to have a length of bowel removed during emergency surgery and ended up with an ostomy. Having read of Wills' hatred of her stoma, I'm left with far greater admiration for how my step-father took it in his stride and got on with life with 'Billy' the Ileostomy.
I found some of the ostomy stuff absolutely fascinating and gory - the experience of watching mussels and raw oysters squeezing their way out of her 'insides on the outside' was particularly memorable. The fact it's only one I knocked off is testimony to how good the book is. Firstly for poor editing; a journalist shouldn't make such mistakes and at times they were distracting. Secondly, for probably alienating quite a lot of her potential readers with similar conditions who she found on online fora and described multiple times as 'illiterate' though I did recognise her comments about the negativity of such groups.
And finally, I found her disparaging IMO comments about people who get cancer and how they have an easier time of it, deeply ignorant and unnecessary. This shouldn't be a competition about who has the crappiest life - especially when you're just had a go at online forum members for competing with one another about just how terrible their lives are. Picked up this book as I too have a chronic invisible illness and I wanted to see how a write would describe her pain, fatigue and all the other symptoms, thinking that I could maybe use some of her words to help my family and friends better understand my condition.
I think it worked to a certain extent - my mum is also going to read this book to try and see exactly what I feel and experience on a daily basis.
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Anyway, enough about me I found this well written, engaging and honest, a really grea Picked up this book as I too have a chronic invisible illness and I wanted to see how a write would describe her pain, fatigue and all the other symptoms, thinking that I could maybe use some of her words to help my family and friends better understand my condition. I found this well written, engaging and honest, a really great book to recommend to family and friends of any one of the conditions that Juliette suffers from, or indeed potentially any chronic invisible illness.
May 03, Naomi rated it really liked it Shelves: Wills shares her story of learning to live with chronic debilitating excruciatingly painful illness, the sharp contrast between her life before and after the illnesses came into their fullness, and the reality that there is no getting better and learning to cope with that. Angry - and with plenty of reason - this is a fine read for others who have developed one or more chronic debilitating illnesses there is so often more than one! An emotional book that will have you laughing one moment and tears in your eyes the next.
Would recommend this to anyone who has had to live with personally or see a loved one deal with a chronic illness on daily basis. A fabulous insightful read. I really enjoyed this book.
Mostly Cloudy With Some Bright Spells
I originally borrowed it from Amazon Prime to hear about her way of dealing with AS, as I have recently been diagnosed myself. It didn't take long though to get caught up in her romances an wacky ways. Wonderful read Juliette is an actual superhero, I'm sure of it!!!! Her humour throughout everything is a credit to the strong and brave woman she is. I have IBS which is tough but is nothing compared to what she goes though.
Laura rated it liked it Apr 03, Rachel rated it it was ok Jun 10, Alice Wright rated it it was amazing Jul 03, Sara Beaney rated it really liked it Apr 07, Nadia rated it liked it Dec 08, Sarah Brandis rated it really liked it Apr 05, Janet Harding rated it liked it Jul 20, Alexis rated it really liked it Dec 27, Jamie rated it really liked it Jan 11, Lynsey rated it liked it Dec 08, Jeremy rated it really liked it Mar 30, Mrs G L Dawwas rated it it was amazing Mar 22, Heidi Akerman rated it really liked it Apr 20, Sarah Bird rated it did not like it Jan 23, Maria Webb rated it really liked it Jun 18, Rohini rated it it was amazing Dec 17, What's remarkable is that through all of this, her sense of humour never seems to fail her.
Her parents are absolute stars and most of her friends seem to have been rocks of solid support.
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Her taste in men seems to reflect a shocking lack of self-worth as she picks losers, liars and utter space-cadets. Her early life as a journalist was really interesting and at times very funny and serves to contrast against just how awful it worked out later. Whilst there are times when reading about not sleeping for weeks on end, all kinds of bodily 'gunk' falling out of her butt and constant pain does get a bit challenging and - dare I say - repetitive.
Her apparent bad treatment at the hands of uncaring nurses is shocking but very believable. My step-father had to have a length of bowel removed during emergency surgery and ended up with an ostomy.
Family's tribute to "beautiful" Natalie, 26
Having read of Wills' hatred of her stoma, I'm left with far greater admiration for how my step-father took it in his stride and got on with life with 'Billy' the Ileostomy. I found some of the ostomy stuff absolutely fascinating and gory - the experience of watching mussels and raw oysters squeezing their way out of her 'insides on the outside' was particularly memorable.
The fact it's only one I knocked off is testimony to how good the book is. Firstly for poor editing; a journalist shouldn't make such mistakes and at times they were distracting. Secondly, for probably alienating quite a lot of her potential readers with similar conditions who she found on online fora and described multiple times as 'illiterate' though I did recognise her comments about the negativity of such groups. And finally, I found her disparaging IMO comments about people who get cancer and how they have an easier time of it, deeply ignorant and unnecessary.
This shouldn't be a competition about who has the crappiest life - especially when you're just had a go at online forum members for competing with one another about just how terrible their lives are. Picked up this book as I too have a chronic invisible illness and I wanted to see how a write would describe her pain, fatigue and all the other symptoms, thinking that I could maybe use some of her words to help my family and friends better understand my condition. I think it worked to a certain extent - my mum is also going to read this book to try and see exactly what I feel and experience on a daily basis.
Anyway, enough about me I found this well written, engaging and honest, a really grea Picked up this book as I too have a chronic invisible illness and I wanted to see how a write would describe her pain, fatigue and all the other symptoms, thinking that I could maybe use some of her words to help my family and friends better understand my condition. I found this well written, engaging and honest, a really great book to recommend to family and friends of any one of the conditions that Juliette suffers from, or indeed potentially any chronic invisible illness.
May 03, Naomi rated it really liked it Shelves: Wills shares her story of learning to live with chronic debilitating excruciatingly painful illness, the sharp contrast between her life before and after the illnesses came into their fullness, and the reality that there is no getting better and learning to cope with that. Angry - and with plenty of reason - this is a fine read for others who have developed one or more chronic debilitating illnesses there is so often more than one!
An emotional book that will have you laughing one moment and tears in your eyes the next. Would recommend this to anyone who has had to live with personally or see a loved one deal with a chronic illness on daily basis. A fabulous insightful read. I really enjoyed this book. I originally borrowed it from Amazon Prime to hear about her way of dealing with AS, as I have recently been diagnosed myself.
It didn't take long though to get caught up in her romances an wacky ways. Wonderful read Juliette is an actual superhero, I'm sure of it!!!!
Her humour throughout everything is a credit to the strong and brave woman she is. I have IBS which is tough but is nothing compared to what she goes though. Laura rated it liked it Apr 03, Rachel rated it it was ok Jun 10, Alice Wright rated it it was amazing Jul 03, Sara Beaney rated it really liked it Apr 07, Nadia rated it liked it Dec 08, Sarah Brandis rated it really liked it Apr 05, Janet Harding rated it liked it Jul 20, Alexis rated it really liked it Dec 27, Jamie rated it really liked it Jan 11, Lynsey rated it liked it Dec 08, Jeremy rated it really liked it Mar 30, Mrs G L Dawwas rated it it was amazing Mar 22, Heidi Akerman rated it really liked it Apr 20, Sarah Bird rated it did not like it Jan 23, Maria Webb rated it really liked it Jun 18, Rohini rated it it was amazing Dec 17, Julia rated it really liked it Sep 05, Melanie Lewis rated it it was amazing Sep 13, There are no discussion topics on this book yet.
Former sports journalist, Guardian columnist, celebrity interviewer, football fanatic.
Weather: Some bright spells, otherwise rather cloudy | Halesowen News
Now cursed with ankylosing spondylitis, scoliosis and ulcerative colitis. I love donkeys, cats and dogs of all shapes and sizes and Tottenham Hotspur FC - my first love. I live in a city in the UK with Former sports journalist, Guardian columnist, celebrity interviewer, football fanatic.